Your family and friends...

 Family and friends will go nuts from you.As patient as they are, you have to try to understand that they don't understand as fellow sufferers do.BUT, YOU WILL LOSE IT EITH THEM AND VICE VERSA BECAUSE WE ARE MERE MORTALS.

Six years later...

Six years later after my surgery this is what is difficult.

Half Vision so I only have peripheral vision on one side, I stumble, lack depth perception, trip, always worry about falling.

Balance issue. Can't walk straight I feel my body pulled in different direction all of a sudden, no warning, it just happens.

LIGHT HEADED, I FEEL LIKE I am always moving...

Can't lay flat, can't sleep to the left or I go into a spin.

Head hurts.

Head aches.

Tire easily.

Have to nap, have to close my eyes.

Eye strain because I eye has to do all the work.

Can't read. Use audible to listen to a book. Use Dragon for the computer.

Can't participate in a lot of activities.... I miss golfing, bike riding, walking, hiking.

I feel like Mrs. A ago....

Ant drive.

There's more, but I hit on the big ones.....

More symptoms...

More symptoms are:
All of a sudden I had high blood pressure
My girlfriend insisted I go to the doc and all of a sudden I am taking blood pressure meds. If I had not been on them I probably would not have survived my mega brain bleed. Thanks, Vicki.
Twittering eye....
Tintinitis, ringing in my ears.... Amazing it stopped like the day after my surgery and my blood reassure went back to normal.
Listen to your body, if something seems wrong then address it.
Don't wait!!!!!!

Watch for warning signs for brain bleeds...!

Watch for warning signs for brain bleeds and don't wait to go to a Neuro!!
Warning signs are:
Severe headaches
Drowsy nests
Lightheaded nests
Vertigo
Lack of concentration
Depression
Panic attacks which might be your brain bleeding
Age doesn't mater

What to do?
Run to ER
Get an MRI in a closed MRI with the special tests done for the brain, a 3T machine
Go to a research hospital
Pick a doc who specializes in brain surgeries
FOR INSTANCE, I PICKED MY SURGEON BECAUSE HE WAS AT A TEACHING HOSPITAL
WHO SPECIALIZED IN BRAIN STEM CAVERNOUS ANGIOMA SURGERIES
Look things up on line
Join the Cavernous Angioma Alliance on line, ask, ask, ask!!!!!!!!!

My head hurts, my head hurts...

My head hurts, throbbing pain, is this migraine pain, is this still soreness from the surgery from 6 years ago. Am I going to be a sorehead forever?
Because I can only see out of one eye is it eye strain.
I wish I knew...

I am writing articles...

I am writing articles, revving up to write my book.
I have piles and piles of notes that need to put into some kind of order.

I need more energy!

I need more energy! Nuvigil has helped the most!
Ritalin and addiral was suggested to me, but my Neuro said no way for me!!!!

I did a walk for Lung Cancer , last one in , but made it 3 miles. The rest of the day I had a throbbing headache, had to focus on making it through the rest of the day.

Maybe too much for my vestibular or nervous system???

I don't get it.

Do I push or listen to my body who said you are gonna pay?

Who has the answers?

I made it though, last place!

I was recently visiting home...

I was recently visiting home and took a shower, ll of a sudden I felt my body slipping backward and could picture myself breaking my neck.... By shear force I knew I had to keep myself from falling... Scary!!! I never know when this is going to happen!
I just feel like I am being pulled...
I wish I understood this stuff better.Does my vestibular system just work on a low battery?