My neck...

My neck is writhing in pain today...

I thought it was getting better for the longest time and now I am trending downhill.

Didn't sleep well....

Didn't sleep well last night. Took my second dose of nuvigil a little late and too much reading and writing. Got to use the Dragon program more!!!!

When people don't call...

When people don't call who you expect to call was at first hurtful. The good news is the people who do call and let you know how much they care and lend their support.

We are not DISabled, not handicapped, crippled....

We are not DISabled, crippled, handicapped and all those other yech words you have for us-we are brave, tough, courageous, Warriors !!! 

You have a lot to learn from us!

Remember when you use to have a heart throb?

Remember when you use to have a heart throb? Now, I have a throbbing head ever since I had my. Brain surgery 6 years ago.

Thank you Muhammed Ali...

Thank you Muhammd Ali fr leading us all, every creed and color! Now we must sting like a bee and stamp out injustice and bigotry.what courage growing up in a time of Jim Crow laws, but he taught us not to be afraid ...so now we must carry the torch of freedom, peace, justice, wisdom and make our voices be heard for all.

Yesterday I met a friend....

Yesterday I met a new friend who is another warrior. I could tell when I was speaking to her that she was new to dealing with the trauma of brain bleeds. I remember being in the place that she was and she knew that I could feel her pain and that I walked in her shoes and I will always walk in those shoes. I hope I can help her and it will be a mutual relationship because we need each other because we understand each other in a way that other people cannot. There is so much to know about the brain brain bleeds dealing with the emotional the psychological family the surgeries. So, it is the start of a new relationship.

When you travel...

When you travel purchase brightly colored luggage so it will be easier to find.

Use a wheelchair to get to the gates.

Make sure you leave enough rest time everyday.

Try to stay close to the airport I'd you can, no long cab rides.

Wear tennis shoes.