How to deal with bandaging an eye..

How to deal with bandaging an eye was a never ending learning process for me. After surgery my left eye would not shut due to cranial nerve damage.... I had to have it taped on and odd so the eye wouldn't. Stop working and had to put eye drops in every hour so my eye wouldn't dry out.the docs put on tape that was hard to pull off my face with gauze which was also itchy and uncomfortable. After about a week or so I was introduced to a neuro ophthalmologist who took a breathe right strip which she used as a bandage which was much more comfortable.
I also used a pirate patch ,had a friend sew a patch over my eye glass, I just kept trying different things,
Then one day, almost 2.5 years after my surgery a woman stops me in the gym and asked me why I was using such uncomfortable tape on my eye. She sent me right to the drug store to start using eye bandages. Why didn't someone tell me that before????
Well, now you will know! What a relief...
I also wear dark glasses for bright lights and the sub.
Also a cap helps a lot....

When you start a new medicine....

When you start a new medicine be sure your doc has checked to make sure it agrees with your other meds you are already taking.
Discuss with doc the side effects...
I always start a new drug with half of what the doc prescribed to see if it agrees with my system.
For example, I tried nuvigil , only half of what the doc suggested. Half of a nuvigil works great , when I tried the other half later in the day I got jittery. So, now I am going to take my half in the morning and try half of a half later in the day...
I have learned to not rush a new drug, especially psychotropic drugs..

I love Picasso ,s cubism...

I love Picasso,s cubism because it reminds me so much of how I have felt through my brain bleed... In pieces, not all put together, some parts of me work better than other parts, I think unglued would describe it the best...

Read and join the cavernous alliance assoc...

Read and join the cavernous alliance assoc. this is where you can learn about other people,s experiences and get advice and make fellow friends who are going through similar experiences. I couldn't read it for a long time because I was scared and was afraid of what I would find out. Be ready to embrace the good and the bad...
Recently I read about a fried who I have been following for a long time who might need surgery again. Of course it scared me at first, even though I know that can happen again. It took time to process it and now I realize that could happen to me too.
But, now I am no longer afraid and leave each day.
What will be will be....

What to do when you get an MRI...

What to do when you get an MRI ...
1)depending on your case, be sure you are sedated if needed.
2) depending on your ins.,offer to pay cash, it can be cheaper. I paid around $500 for my last one.
3) be sure you have it in a closed MRI , the other ones are not for us.
4) make sure you have the appropriate contrasts done
5) make sure get the right cuts which the docs will understand
6) ask questions...

It feels like being in a twister, it is just inside your head...

It feels like being Ina twister, it is just inside your head.. I have tried so many times. To put it into words what it feels like when you have a brain bleed... You are zooming through the sky, you can't really feel your body, you want to grab onto anything you can reach,your heart is pounding..
I often land on the floor because it pushes me out of bed and I think it might be searching for comfort...

How come their isn't a soap opera....

How come their isn't a soap opera called The young and the helpless?! Had another spin last night... I hate them..
I think when I am overtired and stressed I am more prone to them?