Be sure to join thr angioma alliance...

Be sure to join the angioma alliance for further info and to share and learn more stories. I could not read anything or join for a long time until I got out of denial. Now, I like bring part of this organization.

Most important is to register with the DNA and tissue bank so we can help get to the bottom of this problem.

Brett Michael, gabby giffords, mark Kirk,George Gershwin ....

Brett michaels,gabby giffords, mark Kirk, George Gershwin ... You are all warriors as I am...

We found courage we didn't know we had. And,George , you could have been sa Ed but the medical community wasn't advanced enough at the time...

And so many more names who are warriors too...

We fight on, we learn to live with the disabilities and some are lucky enough to make a full recovery.

And some don't even get the chance.

After the brain bleed...

After the brain bleed I could not take the left eye patch off for a second. If I did take it off. I would feel like I was falling down to the bottom of the Grand Canyon .

Awful feeling...

Gels and tapes continued....

Gels and tapes continued.... To explain further, my eyes do snot work together. I call one eye my Republican eye and the other eye my Democratic eye. They can't agree to do anything together. So, that is the reason I patch my left eye so much since my right eye works better....

When both eyes are out I have to constantly converge my eyes, I have blurry ness ,I call them my kaleidoscope eyes...

Gels and drops. Be sure you ask your doc to explain about the different drops. I use the heavy gel at night, sometimes drops so my eyes will be clearer, etc. etc. be sure you discuss this with your doc

In detail.

You won't believe what a difference the right drops and gels make!!!

Gels and tapes...

Gels and tapes... Since my surgery three years ago I have had to put gel in my left eye every two hours,sometimes more. Then I have to put thr tape on and off...just to be sure that the eye keeps functioning.

Cured sells an eye bandaid which I found to work better than all the different tapes I tried.

Driving to my husband's work for the first time...

Driving to my husband's office for the first time-wow! It has been at least three years since I have driven to the office..... I was nervous about driving, but it was time to go for it. I didn't go on the highway, I took the side roads because I was a bit nervous.when I got to the office I could feel my hands trembling a bit, but thèn I felt so happy that I did it.

This was the first time I didn't have help and my dad was visiting from out of town, so off I went.

When I got to the office, I rested for awhile, shut my eyes and did some deep breathing.

When I left I knew in my heart I was goi g to go hwy home or bust!!!

It felt so good.

A real sense of accomplishment ..

Ready to try the next step!!!!

One thing I don't have to worry about is turning 60....

One thing I don't have to worry about is turning 60 because I have been to busy surviving having a brain bleed... I am just thankful to be surviving,adjusting to my disabilities, thankful to be in the game,

Ok. I am third string....