My new problem has been having gargantuan headaches verging on migraines...

My new problem has been having gargantuan headaches verging on migraines...it has been 2.5 yyears since the surgery ,always had head pain, but now it is worse. One doc said it is because the Scar tissue Is pressing on my nerves. Also,it is just a continuation of myo facial pain from the surgery.
I will continue with acupuncture which helps relieve the pain. I also will start cranial facial therapy.
That means massage which is more gentle rubbing and they will help my to turn my head further to the left, lay flat and lay to my left....

I went to Madison to visit my Dad...

I went to Madison to visit my Dad who is 96 and lives alone in the house I grew up in. I got a chance to visit with his friends, talk to his social worker, nurse,etc. he does amazingly well and fortunately he comes to see me once a month.
I am still adjusting to driving and was suppose to meet my friend to do some fundraising . It was a place that I had never been to before and it was way out of the city. All of a sudden I had a panic attack which I hadn't had for years. I shook from my head to my toes. My body was letting me know to not attempt this drive. It was too far and I was unsure of finding it. So,I came to my senses and had my friend drive to our meeting. I listened to my body. I am not there yet to take on such an undertaking.

Three pounds of matter really matter...

Three pounds of matter really matter !can you believe that is all your brain weighs and the brain runs the whole show? That sure came as a surprise to me... Of course, I know mine weighs a little less since they cut into it. You should feel is, mine is now like a ski slope I the back, and you can kind of wiggle the spot where they cut me open. I wonder if it is ok to wiggle it, probably not...
And in those three pounds who would think there are millions of neurons.. I have been trying to shake hands with all of them,not done yet...

How important the right pillow is..

How important the right pillow is. Because I cannot lay flat physically, I bought a pillow from a specialty bed store and bought this pillow that makes me sit upright as much as possible.
I also have a problem of waking up from a deep sleep and start flying spinning... So ,my husband discovered that my problem was positional. Once I started using the pillow the night spins were reduced. I still get 1-2 a month. They are awful. I hang on to my husband for dear life ,often falling out of bed when it stops I am panting Ike a dog , my heart is pounding, and I often go fetal for at east a hour before I can get up.... Then I spin in bed for awhile before I can go back to sleep.
Then the next day I fee depressed,worried about the next night

Today is Sat.,march30 and thiß is the first night...

Today is Sat.,March 30, the first time in 2.5 years that I went out to dinner at a busy restaurant and I could take me patch off for a period of time. I did it twice! Progress is such an incredible feeling!!!!!!

You notice I keep calling it a brain bleed which it was...

You notice I keep calling it a brain bleed, but it w a stroke. I just don't like to call it that..I t is more vague when you describe it to people....

One trick pony, one trick table..

One trick pony, one trick table...my kitchen table became a nightmare for me after my brain bleed.
When we ate dinner I always felt like the table is moving and I am moving too ? I became so edgy at dinner,we often had to eat on the couch in the sun room I was like Harry potter, never knowing what was going to move next. I started to hate the table!!!! If I wanted to be Harry potter I would have signed up for magician,s school....