It's been so long, sometimes I can't talk about it...

it's been so long, sometimes,I can't talk about it. I have forgotten to appreciate my caretaker .. I have been so busy. That I hav been selfish and have just focused on my own survival. As hard as it has been for me, it has been just as hard for my husband . What are his feelings?!

Blindness, war

Blindness is something I avoided talking about, didn't want to think of myself as being even partially blind let alone blind. All I can say is it is hard enough with one eye, but blindness?!

The blind who go out and function every day are the real heroes.

The table of terror

The table of terror-just remembering how hard it was to eat dinner at the kitchen table,or as I called it the table of terror. It helped to turn the lights off, but I had developed a "thing" about the table. I felt like I was on a ride at six flags, I felt uneasy, fear.
It was years before I could eat at our table in peace.
The same problem happened in restaurants, I never knew when I would spin off..
Today I am going to put all the lightbulbs back in.
Still hard in restaurants  between the lights and sound.

it's been a long time since I have written in my blog.

It's been a long time since I have written in my blog.Things have been very busy with the loss of my sister and the loss of my father. But, I am back and would like to continue with my journey of my recovery. I am getting better every day. I feel stronger and I feel like I have my soul back. I don't need as much help, and manage most days by myself. Driving is still an issue, so I do drive but it's not very far. Through the use of new vigil and switching up my meds I feel better along with the tincture of time.

Thanksgiving spin

It was Thanksgiving and I had been feeling pretty good. So I went shopping with my daughter and her fiancé and all of a sudden I felt like I was flying through the windshield. I reminded myself that this has happened to me many times before, and I did not want to tell them what was happening to me. So I told myself that you could just cope with it, breathe, it has happened before , and then I took a Xanax....and it was a while before I fell well enough again. So we continued our shopping I still was edgy but I knew I could make it without sharing the experience with them. But what puzzled me was that hadn't happened in a long time and why did it happen today....


Sent from my iPad

Myofacial

I would like to tell you what myofascial pain means, it's a pain in the facial tissues around the muscles of the head.  I have been recovering for 2 yrs.  I have had more head pain than earlier on  my recovery, so now my head hurts every day and I have tried acupuncture. I have tried massage and I have also been using Botox shots in my head to help relieve the pain. Of course I'm taking a lot of medication to go on my daily activities. Meanwhile m head still hurts everyday.


Sent from my iPad

Check your medications to be sure they are correct.

I did eventually figure out why I felt like I was flying through the windshield that day. I couldn't imagine how this could happen to me again after months and months of being okay. So, it occurred to me to look at my meds which I get in a blister pack and I noticed that the meds were not correct. It was such a relief to know that it was a drug screw up and that I wasn't getting sick again. And then i was so angry that the pharmacy could not package my drugs correctly! i was out of sync for about a month because i would never doubt the pharmacy... i called the pharmacist who makes the blister packs for me , and sure enough the meds had not been placed in the right pockets and that's why I felt sick again. I can't believe that the druggist could give me the meds wrong, so take it from me always 

Check your prescriptions to be sure they are accurate .

Sent from my iPad