Don't always listen to your doc ...

Don't always listen to your doc, keep your own records, look things up on line and remember every case is different. 

A since I had my brain surgery my head and neck ache. I do a lot of things to deal with the pain with my best luck being Botox, massage, ice, moist, heat, Tylenol when it is unbearable. 

I was using a neck brace at nice for the. Throbbing hard and neck pain, my Neuro said not to. I asked around and the verdict was to go ahead and use it as needed when you are sleeping. Zit will not cause atrophy because I won't be wearing it all the time and I nay use it as needed.

So, don't forget about good old common sense!!!!

I went to my niece's graduation yesterday

I went to my nieces’ graduation yesterday; she got a Master’s degree from the School of Social Work. I found it particularly moving since I have been on the receiving, and also on the giving end of social work. I practically cried all the way through. It made me think of how many people have been helped by social worker myself included and the effect I have helped on helping my friends in many different ways. It really does take a village, it really does help, and it really does make a difference when we all help each other listen to each other, care for each other, treat everybody’s lives as important as the next person. I really tried to apply it to myself, I will never be whole again, I have limitations, I am now a wounded warrior, but just as important as anybody else. It was important to remind myself and hear this. I sometimes forget this and it reinforced how important it is to live every day to the best of my ability.

This articla is about a 71 year old actress! Check it out!

 This article is about a 71 year old actress, who had a brain bleed on stage and lived to tell the tail. 
http://nyp.st/1W7kYul

Blurry today?!

Blurry today?! Now what?! 

Ran over to my eye doc and they discovered my contact wasn't centered on my eye.

Hmh... No wonder my vision was blurry!!!

Had a little black out!

Had a little black out! I had been typing too long, got up, walked to another room and kind of blacked out briefly. It triggered back memories of blacking out before my surgery, but this was brief, chalked it up to. Yo rain saying you over did it.

Made it to the couch, my heart panted for awhile , took a Xanax and calmed down.

A reminder to calm down, you are an other with different rules

You pay if you don't obey!!!!

I have been post traumatic...

I have been post traumatic . Earlier on when I was in the red zone and just focused on surviving  my brain surgery and recovery, I thought some day I would be done.

Well, now the reality of never being done has taken it's toll on me. I am impaired. And, yes, I am thankful I survived, BUT.....

So, I can be irritable, crabby, vulnerable, touchy, give into human frailties, a lot of bad human qualities.

So, my family has had to bear the brunt of it. I can't let the world know, I have to put my good face on for them and be strong and be a role model for others and I know so many have suffered so much more.

So, dear family, I am sorry for mis behavin'... I don't mean to but I know I do.

Thanks for loving me no matter what.

I will continue to strive to get to acceptance , so not my style, but I have to take my boxing gloves and accept the new normal.

I love my family and friends and the others who have given me support through my shit days...

It causes me deep pain that I have this anger that lands on your head.

Please forgive me .

I love you.

Amazing day...

Amazing day on sat....

Because I am limited in what I can do since my brain bleed and surgery , no longer can work,  I had t do a 360....

One thing I do every week is visit a Holocaust survivor who is 91. She is amazing . She was taken by train with her family , they were sent to the gas chamber and she was sent to work because she was a teenager.

I have b even visiting her for a year and a half, and she always wants to go to the Holocaust Museum.

At first I didn't really think she waned to really go, but she did.

By shear coincidence, I was able to l locate a fellow inmate who was with her the whole time she was there.

She is now a docent at the Museum and she was able to meet us there and tour the Museum with us.

It is a day I will never forget.

Now I know what courageous really is.