Angioma Alliance Family Conference - Dr. Awad

Went to the Cavernous Angioma Alliance Convention....

Went to the Cavernous Qngioma Alliance convention and learned a lot! Will organize my thoughts and get back to you.

Families forget,that you suffer everyday !

Families forget that you suffer everyday because they are sick of it! Well, so are we.it just never goes away. We adapt.

If I read too much...

If I read too much in a day I am bound too get my little earthquakes/spins caused by too much vestibular stimulation. Bummer!

My contact not working la5ely....

I started wearing a contact on my bad eye which was working for awhile which gave me more vision.

So happy. Then, my good eye started going up and down, seemed to dull its' vision , my balance was off.

So, I went back to patching my bad eye and immediately got stronger, balanced improved, vision improved inmy right eye. So, what's it all about mr. Brain?!

I will try the contact again slowly...

Went to yoga, lunch, out to dinner and a party....

Went to yoga, lunch, out to dinner and a party.....

Wasn't so long ago couldn't do all those things in one day.

Almost felt semi-normal!

Enjoyed comparing war stories with a friend who also had similar problems and we both agreed the regular humans don't get it.

They sympathize, they listen, they don't listen. Only another warrior gets it down to their soul....

My Daughter's 30th!

My Daughter's 30th Birthday and surprised her in Charleston, S.C.! Also celebrating a Very Special Engagement of Someone Very special to us....so much to see and tour. So much comes back to mind when I think of the South and it's history. I started out ok, but. My noon of course I faded and back to the hotel for me and rest time. 

I am happy to be with my family, but can't escape for a day that I now play a different game. It is always there .

I appreciate my family's love and support.

But, I know, it is always there.