Deerfield
Woman Attended Conference on Brain Bleeds in Chicago
The
Angioma Alliance Conference 2015 was my beyond my expectation. I had put off
going to the conference out of fear of hearing again what happened to me, afraid
that it would trigger old fears. I still didn’t know if I had passed the gene
to my children, and I was still learning to cope with my limitation. Plus, I
didn’t know what to expect from the other war stories that I was yet to hear.
Reflecting
back, I don’t know how I had survived this condition since I was a child? But I
can’t help thinking losing powers that I can’t work, that my life and my whole
family’s life have changed. But, I decided to focus on one foot in front of the
other, and learn so much from the following speakers:
· Dr.
Issam Awad – Cavernous Angioma: He
covered a range of cavernous angioma topics: basic disease information, genetics,
and clinical decision-making on topics such as surgery, pregnancy, and spinal
cavernous angioma. For the final 30 minutes, he discussed the latest research
on drugs treatments and news in clinical drug trials. Dr. Awad is the chair of the Angioma Alliance
Scientific Advisory Board and the World’s leading expert on the illness.
He
has helped me to reach the turning in my life, which is to accept my new way of
living to do positive things and to focused on helping others as I continue to
help myself. Don’t hesitate to look up the Angioma Alliance’s website. Take a
look at my blog called, Gotbrainbleeds? or Twitter called Vertigogirl1510. I hope to have my book by December-bigger
reason? People don’t know the symptoms, how to cope, where to go help, I just
to know the there others out there who know what you’re going through. I used to call myself an “other”, but not
anymore. Now I know I’m a fighter and I’m strong, and sometimes when you’re at
the end of your rope. You just have to tie a knot and hold on.
The
world’s leading expert on this illness, Dr. Issam Awad, discussed the disease,
genetics, spinal cavernous angiomas as well as the latest information on drug
treatments and clinical trials. Dr. Eliot Roth, Chair of Northwestern Feinberg
School of Medicine’s Physcal Medicine and Rehabilitation, was also on hand to
present advancements in post-stroke rehabilitation.
To find out more about
cavernous angiomas or the Angioma Alliance Family Conference please visit www.angiomaalliance.org
or email Dr. Connie Lee at coordinatior@angioma.org
For further media
information, or to arrange an interview with Nicki Milin, please contact Leslie
Kaufman at 847-989-1207 or leslie.kaufman@comcast.net
