Rare Disease Day!

https://www.facebook.com/nicki.milin/videos/o.21515208367/1352274851462538/?type=2&theater&notif_t=video_processed&notif_id=1488292554160235

My introduction to my video blog

Noticed a difference...

Noticed a difference from going to a physical therapist in just a few days.

I always complain that my head hurts and the p.t.suggested that I wear a soft collar most of the time.

I am practicing turning y head to the left a bit every two hours.Six years out from my surgery and I can't turn left nor lay flat.

So far, the biggest change is my head not throbbing  with pain.

I can feel the difference....

I remember when I first...

I remember whenI first took my eye patch off for a minute that I was falling off the edge of a cliff...

I have noticed that I can take it off for up to five intestinal and if I am just looking straight ahead I can see pretty well.....

Always check out a new script....

Always check out a new script. Talk to your doctor after you discuss which drug you’re going to be adding, make sure you ask him if it agrees with your other meds before you take the script to your drugstore. Also I recommend titrating the drug to see if it agrees with you. It has happened on occasion where a new drug makes me sick and just doesn’t agree with my system. So, I always recommend go slowly for the first two weeks and then go up to the amount that the doctor recommended.

Symptoms

Symptoms

There is so much to say about different symptoms, the most common wind is a headache vertigo sometimes a seizure feeling dizzy you just know that your body isn’t feeling right. I first recommend that you go to the emergency room right away do not hesitate. Second thing make sure you ask for an MRI at least a CAT scan to have them see what’s going on in your brain. If they want to do an MRI they will probably best for you to the neural/teaching hospital. Make sure you have an MRI in a full to MRI that should have it done in a T3 machine which is most preferable because they can see the most on that machine, that they do all the extra testing associated with the brain. Make sure you go to a teaching hospital see a neural who is experienced with brain research nowadays it’s so easy to look upon lying, contact the cavernous angioma alliance society and they can help you, make sure you at least get to a teaching hospital with the narrow who has experience with the brain. Do not just have them say your fine and go home make sure that testing is done because most hospitals are still not familiar with brain bleeds which are really strokes. A brain bleed is a blood vessel in your brain that doesn’t have a full wall it’s like a raspberry that is leaking. An aneurysm is a brain bleed that I call a gusher that is a big bleed that you can possibly die right away. Nowadays, if you have symptoms and rushed to an ER they can hopefully save you they might be able to put a shunt in your brain there are things that they can do that they couldn’t do years ago. I myself was so naïve when I had my brain bleed my big one. I had been having them since I was eight years old but when I had the big one I myself did not go running to the hospital which was a big mistake. Fortunately I’m here today to warn you.

N blood thinners ....

No blood thinners for us brain bleeders!

No aspirin, no fish oil!